Rima Nabbout is Professor of Paediatric Neurology at University Paris cité and Director of the French reference centre for Rare Epilepsies at Necker Enfants Malades, Paris, France.

She is a member of the steering committee of EPICARE (European reference network on rare and complex epilepsies), chair of ILAE transition task force (TF) and member of nosology, medical therapies and Snomed TF. She is member of the European joint program on rare diseases and of IRDIRC and president of the scientific committee of the French National Data Bank for Rare Diseases. She is member of the scientific committees of numerous French, EU and international patients’ groups.

Pr Nabbout is holder of a Chair on genetic epilepsies at Imagine Institute (INSERM U1163) where she is leading in the group “Translational Research for Neurological Diseases” and coordinating the funded Innov4ePiK, a private-public research program on K-related epilepsies.

Her research focus on childhood epilepsies natural history and mechanisms biomarkers, orphan drugs in epilepsies emphasizing the need of patients’ centred and innovative end points and on transition from childhood into adulthood. She has authored over 300 peer-reviewed articles and received H2020, FP7 grants and research budget from FAMA funds and other philanthropic foundations.